tag:blogger.com,1999:blog-6511096583928524671.post5057248321248091987..comments2023-05-18T08:18:57.478-06:00Comments on Sweet Baby Elsie: April 3Ruth Sagershttp://www.blogger.com/profile/17804923030825821078noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6511096583928524671.post-81275409551819579512013-04-06T03:54:45.969-06:002013-04-06T03:54:45.969-06:00So amazing. Such wonderful advise. Keep up the goo...So amazing. Such wonderful advise. Keep up the good work.Lisa Swaseyhttps://www.blogger.com/profile/18302233676166789744noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-74635667862593148352013-04-06T03:54:18.902-06:002013-04-06T03:54:18.902-06:00So amazing. Such wonderful advise. Keep up the goo...So amazing. Such wonderful advise. Keep up the good work.Lisa Swaseyhttps://www.blogger.com/profile/18302233676166789744noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-14095360653047920112013-04-05T20:10:25.517-06:002013-04-05T20:10:25.517-06:00So true. Thanks for putting it into that great per...So true. Thanks for putting it into that great perspective, Mom!Ruth Sagershttps://www.blogger.com/profile/17804923030825821078noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-68506960277883428322013-04-05T20:09:49.943-06:002013-04-05T20:09:49.943-06:00Thanks April, great advice :) YOU are a strong ama...Thanks April, great advice :) YOU are a strong amazing woman of great faith, too!!Ruth Sagershttps://www.blogger.com/profile/17804923030825821078noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-40596750411966527562013-04-05T16:52:10.963-06:002013-04-05T16:52:10.963-06:00I can't believe how big she is! Go Elsie! I ...I can't believe how big she is! Go Elsie! I know our own experiences with Sam are totally different, but I will let you know how we deal with the unknowns and the future knowing she might not live a long life. We just live today. We treat her like any of our "normal" girls and then modify when we have to. When she can't walk anymore, we just "backpack" her around piggy back style. We let her fall, we let her get too tired, we let her live. We don't think about the future too much. It will come when it does. And then I'll deal with it that day. Until then, we just play. You are a strong, amazing woman of great faith. Keep up the good work, mom! Anonymoushttps://www.blogger.com/profile/06577144342817228629noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-24436908061194030752013-04-04T12:16:11.103-06:002013-04-04T12:16:11.103-06:00Good advice from your friend Christine -- just lov...Good advice from your friend Christine -- just love Elsie like you would any other baby! She is yours forever. Any "broken" parts will be mended eventually. In the mean time, everyone will adjust and adapt if needed, and Elsie will have a good life because she is loved and cherished by so many! Keep the faith!Linda Westoverhttps://www.blogger.com/profile/00873132488418225015noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-13037234941346911462013-04-04T10:06:10.015-06:002013-04-04T10:06:10.015-06:00Dearest Ruth and Clayton! Good news she is growin...Dearest Ruth and Clayton! Good news she is growing! While I know there is not much that you can do there is things that you CAN do! <br />1. Take things day by day, hour by hour if needed. <br />2. Treat her like there IS nothing to worry about. (burying your head in the sand at this point is maybe NOT a bad thing ;-) Talk to her, sing to her, etc. Treat her like you would Evja. Best advice I ever got! Most likely you WON'T know how the bleed will affect things until you reach that point in her life. Then and only then can you deal with it.<br />Yes Grade 4 IS bad but they don't know how Elsie will fight it! They don't know how her little brain will repair itself and find new paths around the damaged areas and most of all they don't know how miracles can happen :)<br />Love you guys!Christine and Barry Evanshttps://www.blogger.com/profile/13903147280548099803noreply@blogger.comtag:blogger.com,1999:blog-6511096583928524671.post-43588383939505590162013-04-04T08:53:03.345-06:002013-04-04T08:53:03.345-06:00She has come such a long way and has overcome so m...She has come such a long way and has overcome so much. I pray every day that everything will turn out alright. I believe that Elsie has a special mission here on earth, her life has already touched so many people. I love you!Brenda Suehttps://www.blogger.com/profile/06678180131784121726noreply@blogger.com