We drove through an unexpected snowstorm last night to spend some time with Elsie. Had we known the weather was going to be so bad, we might not have gone, but we did, and eventually got to the hospital without sliding off the road. Much of the same news, including a second brain scan with the same results. It wasn't quite as hard to hear that as it was the first time. Elsie is also having trouble with her digestion, and currently has a tube to help drain excess gastric juices and air from her stomach. They will be doing some tests to try to determine the problem; if it is just that her stomach is way too immature to handle food, or if there is an underlying problem or infection. She is back on the higher-powered ventilator, but like I've said before, every day in the NBICU is up and down, one step forward and two steps back. I know I've said that before, and it's true, but even so, it's hard to receive discouraging news. We're trying to be strong.
Clayton and I have been finding ourselves in our spare time spending more time playing with Evje. She is such a comfort to us during this time. Every little hug is a moment to be treasured. I keep worrying about the effect that all of this is going to have on her. I know, kids are resilient and she'll probably not remember most of this, but it is still hard as her mother to watch her struggle with the changes. My heart breaks a little each time I drop her off at somebody's house.
We continue to be overwhelmed with the support of our family, friends, and even people that we don't know. Thank you for the outpouring of love, especially those of you who have reached out to us as strangers. It really means a lot to us and helps on the hard days to know how many people are praying for us and thinking about us. Thank you to the angels who came and cleaned our house while we were gone, even if I was embarrassed for you to see the messy state of our house. Thank you for the meals and treats that have been thoughtfully delivered. Thank you for watching our dear Evje for hours at a time. Thank you for the financial help. It is so humbling to accept so much that has been given to us, but we know that we couldn't do it without you. "Thank you" doesn't seem like enough, but it's all I can offer to you. Thank you.