Wednesday, April 3, 2013
Remember this tiny little Thumbelina baby? It's crazy to look back and see pictures from the beginning. Her legs were thinner than Clayton's fingers. There are a few pictures that I never posted and I don't know if I ever will, because they scare me so much. We've come a long way, baby.
Sweet baby Elsie is doing great. She is up to a hefty 5 pounds 2 ounces. She is doing quite well with her breathing, and has been weaning down on her oxygen. She is at 2.5 liters per minute on a high-flow nasal cannula. It is my understanding that as soon as she weans down to 2 liters, then they will do the swallow study to see how much her paralyzed vocal cord affects her swallowing. And if all goes well after that, then she will begin learning to eat by mouth. Another step closer to coming home.
Elsie had another eye exam on Monday to monitor her ROP, and it turns out that she has gotten slightly worse. They will continue to monitor her eyes and will give her treatments if necessary to stop the disease from getting worse. 90 percent of the time, ROP will resolve itself and go away before it becomes a problem, so we are hoping that this will happen.
Tomorrow is Elsie's 36 week head ultrasound. Just after she was born, it was determined that Elsie had a grade 2 bleed on the right side of her brain, and a grade 4 bleed on the left side. Grade 4 is bad. Tomorrow's ultrasound, we've been told, will hopefully be able to let us know a little bit more of what we can expect as far as long term brain damage, if there is any. So far, our nurses have been pretty optimistic about Elsie's condition; she responds to noises, turns her head to look where the noise is coming from, moves her limbs, and other things that seem fairly "normal". I'm trying not to think about it too much, I tend to be like an ostrich who buries her head in the sand and hopes that her problems will just go away if I ignore them, but it is a nagging worry in the back of my mind. Clayton is quite worried.
Anyway, the ultrasound will be done tomorrow, and the doctors will discuss the results with us at Elsie's 90 day care conference on Friday afternoon. I can't believe that it has been 90 days, three whole months, since she was born. It has been a long and crazy ride, but you know, I thought it would be a lot worse than it has been.